English  |  正體中文  |  简体中文  |  Items with full text/Total items : 92324/107581 (86%)
Visitors : 18297720      Online Users : 626
RC Version 6.0 © Powered By DSPACE, MIT. Enhanced by NTU Library IR team.
Scope Tips:
  • please add "double quotation mark" for query phrases to get precise results
  • please goto advance search for comprehansive author search
  • Adv. Search
    HomeLoginUploadHelpAboutAdminister Goto mobile version
    ASIA unversity > 管理學院 > 財經法律學系 > 期刊論文 >  Item 310904400/111687

    Please use this identifier to cite or link to this item: http://asiair.asia.edu.tw/ir/handle/310904400/111687

    Title: Biobank Governance: The Cautionary Tale of Taiwan Biobank
    Authors: Shawn, H.E. H;Harmon, Shawn H.E.;Shang-Yung, Yung Y;Yen, Shang-Yung;唐淑美;Tang, Shu-Mei
    Contributors: 財經法律學系
    Date: 2018-08
    Issue Date: 2018-12-25 10:38:26 (UTC+8)
    Abstract: The importance of biobanks has long been mooted, and multiple models of development and operation can be found as a result of many actors founding biobanks (from institutions starting disease-specific banks to governments starting national population biobanks). Many countries began developing biobanks in the absence of national policies to aid in that formation. Taiwan was one such country. Believing that the unique genetic makeup, distinctive lifestyles, and disease-causing factors of the Taiwanese people deserved study, Taiwan took steps to create Taiwan Biobank. This paper examines Taiwan Biobank’s development and governance and focuses on two matters in particular which generated consternation during the development of Taiwan Biobank: the position adopted in relation to autonomy and ethnicity; and the approach toward transparency and internal governance. It concludes that Taiwan Biobank’s conflict-ridden evolution represents a cautionary tale, an example of how not to develop a flagship resource.
    Relation: SCRIPTed
    Appears in Collections:[財經法律學系] 期刊論文

    Files in This Item:

    File SizeFormat

    All items in ASIAIR are protected by copyright, with all rights reserved.

    DSpace Software Copyright © 2002-2004  MIT &  Hewlett-Packard  /   Enhanced by   NTU Library IR team Copyright ©   - Feedback