English  |  正體中文  |  简体中文  |  Items with full text/Total items : 90453/105671 (86%)
Visitors : 16043631      Online Users : 96
RC Version 6.0 © Powered By DSPACE, MIT. Enhanced by NTU Library IR team.
Scope Tips:
  • please add "double quotation mark" for query phrases to get precise results
  • please goto advance search for comprehansive author search
  • Adv. Search
    HomeLoginUploadHelpAboutAdminister Goto mobile version
    ASIA unversity > 管理學院 > 財經法律學系 > 期刊論文 >  Item 310904400/112370


    Please use this identifier to cite or link to this item: http://asiair.asia.edu.tw/ir/handle/310904400/112370


    Title: Taiwan Biobank: Ethnicity-Specific Evidence on Governance and Public Acceptance
    Authors: 唐淑美
    Contributors: 財經法律學系
    Date: 2019-03
    Issue Date: 2019-11-08 10:33:43 (UTC+8)
    Abstract: The subject of biobanks has long been disputed as considerable matters and affairs convolute on the intricate and weighty issue. Mutiple models of development and operation act as the foundation and infrastructure of the biobanks' buildup, fortifying the knowledge database and conclusively contribute to the research study. Taiwan was among many countries who devoted itself to the biobanks construction regardless of the lack of legal support and national policies. Taiwan had a firm belief that the unique genetic makeup, distinctive lifestyles, and disease-causing factors of the Taiwanese genetic pool needed a well-structured study for the welfare of the Taiwanese people, hence, the formation of Taiwan Biobank came into place. This paper examines Taiwan Biobank's development and governance in light of an empirical study which offers evidence on a range of governance issues, including consent, privacy protection, benefit-sharing, and stewardship. Two matters in particular will be discussed in this paper as the range of perplexity they held for the duration of Taiwan Biobank buildup: the adopted position in the autonomy and ethnicity relation; and the taken approach that counterbalances transparency and internal governance.
    Relation: 生物產業科技管理叢刊 Bio-Industry Tehcnology Management Review
    Appears in Collections:[財經法律學系] 期刊論文

    Files in This Item:

    File Description SizeFormat
    index.html0KbHTML219View/Open


    All items in ASIAIR are protected by copyright, with all rights reserved.


    DSpace Software Copyright © 2002-2004  MIT &  Hewlett-Packard  /   Enhanced by   NTU Library IR team Copyright ©   - Feedback