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    ASIA unversity > 管理學院 > 財經法律學系 > 期刊論文 >  Item 310904400/112370

    Please use this identifier to cite or link to this item: http://asiair.asia.edu.tw/ir/handle/310904400/112370

    Title: Taiwan Biobank: Ethnicity-Specific Evidence on Governance and Public Acceptance
    Authors: 唐淑美
    Contributors: 財經法律學系
    Date: 2019-03
    Issue Date: 2019-11-08 10:33:43 (UTC+8)
    Abstract: The subject of biobanks has long been disputed as considerable matters and affairs convolute on the intricate and weighty issue. Mutiple models of development and operation act as the foundation and infrastructure of the biobanks' buildup, fortifying the knowledge database and conclusively contribute to the research study. Taiwan was among many countries who devoted itself to the biobanks construction regardless of the lack of legal support and national policies. Taiwan had a firm belief that the unique genetic makeup, distinctive lifestyles, and disease-causing factors of the Taiwanese genetic pool needed a well-structured study for the welfare of the Taiwanese people, hence, the formation of Taiwan Biobank came into place. This paper examines Taiwan Biobank's development and governance in light of an empirical study which offers evidence on a range of governance issues, including consent, privacy protection, benefit-sharing, and stewardship. Two matters in particular will be discussed in this paper as the range of perplexity they held for the duration of Taiwan Biobank buildup: the adopted position in the autonomy and ethnicity relation; and the taken approach that counterbalances transparency and internal governance.
    Relation: 生物產業科技管理叢刊 Bio-Industry Tehcnology Management Review
    Appears in Collections:[財經法律學系] 期刊論文

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